FH Bielefeld
University of
Applied Sciences

International Week 2021 - GEKO-MmgB

Health Information for people with intellectual disabilities. Promoting health with target-orientated information preparation

As part of International Week 2021 of the Bielefeld University of Applied Sciences, the webinar was offered on May 5.

Health information is all information about the own health. This information covers a broad spectrum, such as information about symptoms or diagnoses, information about health services and where to find the best help for own health problems, as well as information about health promotion and prevention. It is very important that health information is understandable, because it supports the decision-making to take health-promoting measures, at least to assess the risks to oneself or others if one decides against them. The World Health Organization describe: „Intellectual disability means a significantly reduced ability to understand new or complex information…“ (WHO quote). The provision of adequate and understandable health information is crucial for this population group, which is particularly vulnerable to health problems.
Three researchers present their results and point out focal points in the dissemination of information, from an institution view, to communication with external health professionals (GPs) and to inform a whole population.

The presentations were recorded. These can be provided upon request. Please write an email to: dirk.bruland@fh-bielefeld.de.

 Program

Time

Minutes

Programme content

14.00

10 minutes

Warm Welcoming and Background
(Health information for people with intellectual disabilities)

Prof. Dr. Ä.-D. Latteck (University of Applied Sciences Bielefeld, Germany)

14.10

 

30 minutes and

10 minutes discussion

Health Matters Programme: Promoting health where we live, learn, work, and play!

Dr. H. Bergstöm (Akademiskt Primärvårdscentrum, Stockholm, Sweden)

14.50

10 minutes

Break

15.00

30 minutes and

10 minutes discussion

‘I have to explain to him’:  How companions broker mutual understanding between patients with intellectual disabilities and health care practitioners

Dr. D. Chinn (Kings College, London, UK)

15.40

10 minutes

Break

15.50

30 minutes and

10 minutes discussion

Corona and how to create information for a whole population group. First results.

M. Lynch, L. Mc Cormack (RTI International, USA)

16.30

10 Minutes

Summarizing and concluding words

Dr. D. Bruland (University of Applied Sciences Bielefeld, Germany)

 

Speakers:

Dr. Helena Bergström is currently evaluating the Health Matters program, aiming at improving health literacy and empowerment among adults with intellectual disabilities. The program is developed in the US, and are now adapted to and tested in a Swedish context. One of her main interests is to promote health equity by targeting health among people with disabilities.

Dr. Deborah Chinn is a clinical psychologist who works with adults with intellectual disabilities, and a lecturer in the Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care at King's College London. The current focus of her research interests is health communication involving people with intellectual disabilities.

Molly Lynch is an experienced mixed-methods researcher and evaluator with content expertise in disaster preparedness (e.g., pandemic influenza, Ebola, Zika) and a communications researcher with expertise in media content analyses, formative research, campaign development and design thinking methodologies (e.g., journey mapping, co-creation, etc). Ms. Lynch works with a variety of non-profit and governmental clients—including the U.S. Centres for Disease Control and Prevention (CDC), March of Dimes and the Arthritis Foundation—to conduct research and evaluation to inform program development.